To enhance the provision of information on intractable diseases, DBCLS has updated NANDO, a vocabulary of names of intractable diseases. In addition, through international collaboration with the University of Bonn, Germany, facial feature data have been integrated into NanbyoData, a portal site for information on intractable diseases.

NANDO has registered 55 additional diseases, including 7 newly designated intractable diseases in April 2025 in Japan, resulting in a vocabulary for 348 designated intractable diseases and 858 specific chronic pediatric diseases.

NanbyoData integrates 2,447 facial feature data related to 207 diseases based on international collaboration with GestaltMatcher (GM), which is being developed at the University of Bonn, Germany. This has enabled a more intuitive understanding of the characteristics of each disease, further expanding the information base that contributes to the understanding of intractable diseases and diagnostic support in clinical practice and research.

DBCLS will continue to promote international joint research and build an information infrastructure that contributes to research and information sharing on intractable diseases.

Here is a link for NANDO/NanbyoData